Experience in caring for the older people with dementia in the home environment: a qualitative synthesis  of evidence             /            Experiência em cuidar de idosos com demência no ambiente domiciliar: uma síntese qualitativa de evidências

Maria Gabriela Martins Cruzeiro; Mariana Martins Gonzaga do Nascimento; Aline Silva de Assis Santos; Isabela Viana Oliveira; Cristiane de Paula Rezende

doi:10.9789/2175-5361.rpcfo.v14.11788

Authors

Mrs Maria Gabriela Hospital Risoleta Tolentino Neves https://orcid.org/0000-0002-8114-3999
Mrs Mariana Gonzaga Federal University of Minas Gerais https://orcid.org/0000-0003-2183-4365
Mrs Aline de Assis Newton Paiva University Center https://orcid.org/0000-0002-2652-1977
Mrs Isabela Viana Hospital of the Military Police https://orcid.org/0000-0001-7846-5914
Mrs Cristiane Rezende Newton Paiva University Center https://orcid.org/0000-0001-7457-4187

DOI:

https://doi.org/10.9789/2175-5361.rpcfo.v14.11788

Keywords:

Integrality in Health, Family, Caregivers, Cognitive Dysfunction, Institutionalization

Abstract

Objective: to understand the experience of family caregivers in caring for older people with dementia in the home environment. Methods: a systematic search for qualitative studies and a thematic analysis was carried out to synthesize the results. Results: nine studies were included. Four analytical themes emerged. Recognizing dementia and unraveling care; "You are alone"; Limitations and lack of knowledge in caring for dementia; "It's a last resort [full institutionalization nursing home]." The older people’s loss of autonomy generated feelings of grief and loneliness. Limited knowledge about dementia has given rise to awkward care. Temporary care was perceived as a solution to the need for help. However, institutionalization was approached as a last alternative. Conclusion: the results obtained are important to provide support for the creation of more humanized public policies that consider comprehensive care, assist health professionals in providing care to older people with dementia and their families.

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Author Biographies

Mrs Maria Gabriela, Hospital Risoleta Tolentino Neves

Pharmacist Resident in the Older People´s Health Residency Program of the Hospital Risoleta Tolentino Neves. Graduated in Pharmacy from UFMG (2020).

Mrs Mariana Gonzaga, Federal University of Minas Gerais

Adjunct Professor at the Department of Pharmaceutical Products - Faculty of Pharmacy, Federal University of Minas Gerais (PFA/FAFAR/UFMG), Post-Doctorate in Medicines and Pharmaceutical Services by UFMG. PhD in Health Sciences by the Oswaldo Cruz Foundation/René Rachou Research Center (FIOCRUZ/CPqRR). Master in Health Sciences by the Federal University of São João del Rei (UFSJ). Specialist in Hospital Pharmacy and Health Services by the State University of Montes Claros (UNIMONTES). Graduated in Pharmacy by the UFMG. She is a member of the scientific council of the Institute for Safe Medication (ISMP Brasil).

Mrs Aline de Assis, Newton Paiva University Center

Master in Medicines and Pharmaceutical Assistance by the Federal University of Minas Gerais (UFMG). Graduated in Pharmacy by the UFMG. She works as a professor of the Pharmacy course at the Newton Paiva University Center.

Mrs Isabela Viana, Hospital of the Military Police

Doctor and Master in Medicines and Pharmaceutical Assistance by the Federal University of Minas Gerais (UFMG). Graduated in Pharmacy by the UFMG She is a Pharmaceutical Officer at the Hospital da Polícia Militar de Minas Gerais.

Mrs Cristiane Rezende, Newton Paiva University Center

Doctoral student at the Graduate Program in Medicines and Pharmaceutical Assistance at the Federal University of Minas Gerais (UFMG). Pharmacist and Master by the Federal University of Ouro Preto (UFOP). Specialist in Preceptorship in the Unified Health System (SUS) by the Sírio-Libanês Institute of Education and Research. Researcher at the Center for Studies in Pharmaceutical Care (CEAF/FAFAR/UFMG). She works as a professor of the Pharmacy course at the Newton Paiva University Center and a member of the scientific council of the Institute for Safe Medications Practices (ISMP Brasil).

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